Eighteen Years of Resilience: A Narrative Life History Study of an Individual Undergoing Hemodialysis Therapy
Abstract
Hemodialysis therapy for end-stage renal disease has a poor prognosis, and it is rare for hemodialysis patients to live long. However, their long-term survival is possible. We discovered a case of a patient receiving hemodialysis therapy twice a week at a health center who has survived for over 18 years. This is a rare case; therefore, the aim of this study was to explore their life experiences and analyze the positive factors of their survival. This is a qualitative narrative life history with a single participant as the respondent. The data collection was carried out through interviews using semi-structured questions. Qualitative thematic analysis was used to analyze the data. The study identified four key themes associated with patient survival factors during hemodialysis: family support, adherence to therapy and diet, appropriate levels of activity and rest, and a positive mindset.
Keywords: hemodialysis, survival, long-term therapy.
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CHANDRASHEKAR A., RAMAKRISHNAN S., and RANGARAJAN D. Survival analysis of patients on maintenance hemodialysis. Indian Journal of Nephrology, 2014, 24(4): 206-213. https://doi.org/10.4103/0971-4065.132985
FERREIRA E. S., MOREIRA T. R., DA SILVA R. G., DA COSTA G. D., DA SILVA L. S., CAVALIER S. B. O., SILVA B. O., DIAS H. H., BORGES L. D., MACHADO J. C., and COTTA R. M. M. Survival and analysis of predictors of mortality in patients undergoing replacement renal therapy: a 20-year cohort. BMC Nephrology, 2020, 21(1): 502. https://doi.org/10.1186/s12882-020-02135-7
KHAZAEI S., YASERI M., NEMATOLLAHI S., ZOBDEH Z., SHEIKH V., and MANSOURNIA M. A. Survival Rate and Predictors of Mortality among Hemodialysis Patients in West of Iran, 1996-2015. International Journal of Preventive Medicine, 2018, 9: 113. https://doi.org/10.4103/ijpvm.IJPVM_399_16
GOLDWASSER P., MITTMAN N., ANTIGNANI A., BURRELL D., MICHEL M. A., COLLIER J., and AVRAM M. M. Predictors of mortality in hemodialysis patients. Pan African Medical Journal, 2019, 33: 61. https://doi.org/10.11604/pamj.2019.33.61.18083
HE Y. J., YE C. S., XU K. Y., YANG L. L., WANG K. L., WANG X. M., LI M. Y., WU Y., YING Q. S., WANG M., QUAN S. J., and YANG X. Risk factors and survival analysis of haemodialysis complicated with infective endocarditis. Experimental and Therapeutic Medicine, 2023, 25(5): 203. https://doi.org/10.3892/etm.2023.11902
AHBAP E., HASBAL N. B., SEVINC M., BASTURK T., SAKACI T., and UNSAL A. Factors Associated with Long-Term Survival in Maintenance Hemodialysis Patients: A 5-Year Prospective Follow-Up Study. The Medical Bulletin of Sisli Etfal Hospital, 2022, 56(3): 414-420. https://doi.org/10.14744/SEMB.2022.76983
GARCÍA-MARTÍNEZ P., BALLESTER-ARNAL R., GANDHI-MORAR K., TEMPRADO-ALBALAT M. D., COLLADO-BOIRA E., SAUS-ORTEGA C., and CASTRO-CALVO J. Factors Associated with Resilience during Long-Term Hemodialysis. Nursing Research, 2023, 72(1): 58-65. https://doi.org/10.1097/NNR.0000000000000627
WANG Y., QIU Y., REN L., JIANG H., CHEN M., and DONG C. Social support, family resilience and psychological resilience among maintenance hemodialysis patients: a longitudinal study. BMC Psychiatry, 2024, 24(1): 76. https://doi.org/10.1186/s12888-024-05526-4
HEAF J., NIELSEN A. H., and HANSEN H. P. Long-term haemodialysis survival. Clinical Kidney Journal, 2012, 5(2): 168-169. https://doi.org/10.1093/ckj/sfs011
LAWLESS J. F. Armitage Lecture 2011: the design and analysis of life history studies. Statistics in Medicine, 2013, 32(13): 2155-2172. https://doi.org/10.1002/sim.5754
HAGEMASTER J. N. Life history: a qualitative method of research. Journal of Advanced Nursing, 1992, 17(9): 1122-1128. https://doi.org/10.1111/j.1365-2648.1992.tb02047.x
RENJITH V., YESODHARAN R., NORONHA J. A, LADD E., and GEORGE A. Qualitative Methods in Health Care Research. International Journal of Preventive Medicine, 2021, 12: 20. https://doi.org/10.4103/ijpvm.IJPVM_321_19
HUGILL K. The 'auto/biographical' method and its potential to contribute to nursing research. Nurse Researcher, 2012, 20(2): 28-32. https://doi.org/10.7748/nr2012.11.20.2.28.c9438
ANDERSON C., & KIRKPATRICK S. Narrative interviewing. International Journal of Clinical Pharmacy, 2016, 38(3): 631-634. https://doi.org/10.1007/s11096-015-0222-0
SUNDLER A. J., LINDBERG E., NILSSON C., and PALMÉR L. Qualitative thematic analysis based on descriptive phenomenology. Nursing Open, 2019, 6(3): 733-739. https://doi.org/10.1002/nop2.275
KUKIHARA H., YAMAWAKI N., ANDO M., NISHIO M., KIMURA H., and TAMURA Y. The mediating effect of resilience between family functioning and mental well-being in hemodialysis patients in Japan: a cross-sectional design. Health and Quality of Life Outcomes, 2020, 18(1): 233. https://doi.org/10.1186/s12955-020-01486-x
ISDIARTI R., & ARDIAN I. Correlation of Family Support with Quality of Life of Patient Chronic Renal Failure Undergo Hemodialysis. Jurnal Ners, 2020, 15(2): 569–573. https://doi.org/10.20473/jn.v15i1Sp.22127
ALSHRAIFEEN A., AL-RAWASHDEH S., ALNUAIMI K., ALZOUBI F., TANASH M., ASHOUR A., AL-HAWAMDIH S., and AL-GHABEESH S. Social support predicted quality of life in people receiving haemodialysis treatment: A cross-sectional survey. Nursing Open, 2020, 7(5): 1517-1525. https://doi.org/10.1002/nop2.533
NOGHAN N., AKABERI A., POURNAMDARIAN S., BORUJERDI E., and HEJAZI S. S. Resilience and therapeutic regimen compliance in patients undergoing hemodialysis in hospitals of Hamedan, Iran. Electronic Physician, 2018, 10(5): 6853-6858. https://doi.org/10.19082/6853
KISOMI Z. S., TAHERKHANI O., MOLLAEI M., ESMAEILY H., SHIRKHANLOO G., HOSSEINKHANI Z., and AMERZADEH M. The moderating role of social support in the relationship between death anxiety and resilience among dialysis patients. BMC Nephrology, 2024, 25(1): 100. https://doi.org/10.1186/s12882-024-03533-x
BAZRAFSHAN F. D., DARVIZEH Z., and BANIJAMALI S. S. The relationship between hemodialysis patients’ treatment adherence, procrastination, and difficulty in emotion regulation: A cross-sectional study in southeast Iran. Frontiers in Psychology, 2022, 13: 1041912. https://doi.org/10.3389/fpsyg.2022.1041912
FREIRE DE MEDEIROS C. M. M., ARANTES E. P., TAJRA R. D. D. P., SANTIAGO H. R., CARVALHO A. F., and LIBÓRIO A. B. Resilience, religiosity and treatment adherence in hemodialysis patients: a prospective study. Psychology, Health & Medicine, 2017, 22(5): 570-577. https://doi.org/10.1080/13548506.2016.1191658
LUCAS A., RUTLEDGE J., SLOANE R., HALL K., GREEN C., PIEPER C., COLÓN-EMERIC C., and HALL R. Physical activity is a potential measure of physical resilience in older adults receiving hemodialysis. Frontiers in Nephrology, 2022, 2: 1032468. https://doi.org/10.3389/fneph.2022.1032468
WU Y.-H., HSU Y.-J., and TZENG W.-C. Correlation between Physical Activity and Psychological Distress in Patients Receiving Hemodialysis with Comorbidities: A Cross-Sectional Study. International Journal of Environmental Research and Public Health, 2022, 19(7): 3972. https://doi.org/10.3390/ijerph19073972
MOTEDAYEN Z., NEHRIR B., TAYEBI A., EBADI A., and EINOLLAHI B. The effect of the physical and mental exercises during hemodialysis on fatigue: a controlled clinical trial. Nephro-Urology Monthly, 2014, 6(4): e14686. https://doi.org/10.5812/numonthly.14686
CHEN C.-P., LEE S.-Y., TSAY S.-L., and TUNG H.-H. Resilience, activities of daily living, and well-being in patients with chronic kidney disease. Nursing Open, 2023, 10(12): 7759-7766. https://doi.org/10.1002/nop2.2018
SHOKRPOUR N., SHEIDAIE S., AMIRKHANI M., BAZRAFKAN L., and MODREKI A. Effect of positive thinking training on stress, anxiety, depression, and quality of life among hemodialysis patients: A randomized controlled clinical trial. Journal of Education and Health Promotion, 2021, 10: 225. https://doi.org/10.4103/jehp.jehp_1120_20
POORGHOLAMI F., ABDOLLAHIFARD S., ZAMANI M., KARGAR JAHROMI M., and BADIYEPEYMA JAHROMI Z. The Effect of Stress Management Training on Hope in Hemodialysis Patients. Global Journal of Health Science, 2015, 8(7): 165-171. https://doi.org/10.5539/gjhs.v8n7p165
GONZÁLEZ-FLORES C. J., GARCIA-GARCIA G., LERMA C., GUZMÁN-SALDAÑA R. M. E., and LERMA A. Effect of Cognitive Behavioral Intervention Combined with the Resilience Model to Decrease Depression and Anxiety Symptoms and Increase the Quality of Life in ESRD Patients Treated with Hemodialysis. International Journal of Environmental Research and Public Health, 2023, 20(11): 5981. https://doi.org/10.3390/ijerph20115981
SABOURI F., RAMBOD M., and KHADEMIAN Z. The effect of positive thinking training on hope and adherence to treatment in hemodialysis patients: a randomized controlled trial. BMC Psychology, 2023, 11(1): 6. https://doi.org/10.1186/s40359-023-01036-2
SADEGHI A. H., AHMADI S. A., and GHODRATI-TORBATI A. The effectiveness of acceptance and commitment therapy on clinical symptoms and treatment adherence in dialysis patients. Journal of Education and Health Promotion, 2024, 13: 28. https://doi.org/10.4103/jehp.jehp_1704_22
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