Self-Care Practice among Iraqi Patients with Inherited Bleeding Disorders: A Cross-Sectional Study

Nidal Karim Al-Rahal, Fatma Abd Al Hamza, Maha A. Alnuaimi

Abstract

This study aimed to evaluate the performance of Iraqi patients with inherited bleeding disorders (InBDs) on self-care practice in terms of general preventive measures, physical activity, and healthy dietary patterns. A total of 75 male patients with InBDs were included. Self-care practice performance was assessed using a self-report questionnaire containing 27 items related to three domains: general preventive measures, physical activities, and dietary pattern practices. Total and component scores for self-care practice performance were evaluated regarding patient and disease characteristics. Overall, mean total scores for self-care practice indicated good performance in 22 (29.3%) patients. The mean scores for general preventive measures (27.2, ranging from 19 to 33), physical activity (19.9, ranging from 13 to 28), and dietary pattern (10.8, ranging from 8 to 13) components were in the range of good, moderate, and moderate-to-good performance, respectively. Good performance scores in overall self-care were more likely in students (p=0.031), in normal-weight patients (p=0.047), in hemophilia A patients (p<0.001). And good performance scores in physical activity were more likely in patients with higher educational attainment (p=0.026), in students (p=0.002), and patients with injection administration made by others (p=0.041). Our findings in Iraqi patients with InBDs revealed an overall favorable performance on self-care practice, while a need for improved self-practice regarding physical activity, particularly after a decrease in parental supervision with the start of self-infusion. Overweight/obesity was evident in a considerable percentage of patients. A need for strategies to promote self-motivation towards better self-care was revealed in obese patients and those with constant joint pain.

 

Keywords: inherited bleeding disorders, self-care practice, preventive measures, physical activity, obesity.


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References


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